Xeroderma Pigmentosum is a rare genetic disorder. XP patients have extreme sensitivity to the sun’s ultraviolet rays. Those who suffer from XP have a higher risk of cancer, non-cancerous and cancerous growths on the eyes and may experience various skin conditions.
The XP Support Group was founded in 1999 in the UK by the parents of a child with XP. The group is now as UK charitable Trust that “aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.”
Funds raised by the support group go to assisting families, research, nighttime camp activities, and grants for UV protective equipment and products. Visit the XP Support Group to learn more about Xeroderma Pigmentosum and how you can help families dealing with this disorder.
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